Thursday, July 17, 2008

Induction session at the oncology treatment centre

We had our induction at the Zita Mary today. That is the oncology treatment centre at Calvary Hospital. It was all pretty uneventful really. The reading materials that we had been given earlier, combined with the consultation with the medical oncologist on Wednesday, had already told us pretty much everything we learnt today.

Still, it was good to see the place and meet some of the people that will be there. The staff were reassuring and stressed that chemotherapy isn't always as bad as the stories that go around. In fact, they said that even over the past five years there have been some significant advancements in management of the side effects and the drugs that are used. Most of the side effects can be treated, so long as we tell them what's going on. Everyone's response is different.

The other thing that happened today was we got the results from Ali's bone scan. It looks to be all clear although there was a small spot of interest in her vertebrae but the report stated it was remote that this could be a metastasis. It's more likely minor damage caused by earlier scoliosis. We'll take the scans to show the medical oncologist (whose name also happens to be Alison) on Monday just in case she wants to look at them.

For those that heard about the, ahem...let's call them frank discussions, that I had been having with our health insurer, they came through and confirmed that they would have covered costs for the mastectomy and reconstruction if we had gone through with it. It seemed that when pushed, they were prepared to accept that the breast reconstruction was not 'cosmetic' and that the fact we increased the level of our cover in April this year was an independent decision, not one based on some secret knowledge of a prior condition.

Some lessons we've learned from this:
  • if you think you are right, be prepared to push back
  • if you are not sure, find out somehow but don't just rely on the insurers
  • where you have something serious to discuss and possibly contentious, talk to real live people, not mystery voices on the telephone hotlines (it's much easier to reach over the counter and grab someone in person)

Anyway, that's about it for today. I think Ali must be feeling OK as she's starting to nag at me for writing such long posts. The next big step will be on Monday with the first chemo treatment.

Bye for now and stay posted for more as we go.

Comments
Just a couple of quick things before I go... thanks for all the comments. Ali enjoys reading them all.

If anyone feels they are having problems with posting because their comments don't immediately show up in the blog, please be aware that all comments are moderated (by me). I've set it up this way because this is an open blog and you never know who or what may be posted.

The plan is that I'll only touch stuff that is clearly out of context or inappropriate, or where someone is posting duplicate comments for no apparent reason.

Also, if you want to leave a comment on a specific post, then simply scroll to the bottom of that post (not to the bottom of the page) and click on the small 'comments' hyperlink.

4 comments:

Anonymous said...

Yey! A thumbs up for the bone scan. Bout bl---y time too. Sending a little 'chemo care package' your way courtesy of some ideas from mummo. Big kisses to everyone from all of us. lol Janeo. Hey Al, do you know that you were the 1st person to call me Janeo long before I married an O...spooky.

Anonymous said...

Dear Andrew, Ali, Harrison and Annelise

Thank you for sharing your story with us all, it certainly makes me realise how important it is for even us young women to watch their breast health - I will be taking it more seriously from now on! Our love and thoughts are with you and if you need time away, you're all very welcome at Port Macquarie
Love Morrin, Les and Livia

Anonymous said...

Phew! Good to hear some positive news regarding the bone scan. Hopefully the little slightly suspect area can be confirmed as not an issue. My fingers, legs, & arms are still crossed. thanks for the update. Hope Monday goes smoothly. lots of hugs to all....Jo D

Unknown said...

Hello from Parkes again,
Well it proves that if enough people cross all their bits some good will come. Not sure what this all means but WE were happy to ready the blog this morning, Jilly appreciated it when I read it to her...she was scared and hadn'y heard from you guys. Hey Al did I tell you something really funny...I am a Step Aerobics Instructor...me...yes I am having a boob job later in the year as it's not that easy jumping around.
Love ya's all.
Aunty Bindi
PS Justine says hello as well she is visiting at the moment.