Friday, August 17, 2012

SIR spheres

Well, it's been (much) more than 12 months since the last post.

Life has been pretty good for a while. Kids doing what kids do. I started a new job at the end of March 2012 (with SKM) and Ali has been fine. In fact, so good that she returned to work around June.

Unfortunately, the same time we got the results from one of her scans. It showed numerous new growths in her liver and this was not agood sign.

Fast forward to Monday 16 July and she has just had a hepatic angiogram (needle in the groin to inject dye to check bloodflows).

First drama was a trip to the Emergncy Dept when she passed out and collapsed just after eating breakfast luckily, she was caught. Not too sure what caused this, possibly a mix of stress, lack of sleep and dehydration. Anyway, around midnight we were on our way back home (thanks for looking after the kids that night Rach)

Second drama was a mix up with ordering the isotopes for the treatment, this pushed things back by a week.

The following week when she had the treatment (on Monday) she came out the other end feeling more sick than she has ever felt. Much worse than the chemo and throwing up most of the night, not a very nice time. The Tuesday was still pretty miserable and there was no way she was coming home, even though an overnight stay was postulated as a possibility.

Wednesday morning, I was getting texts about making sure kids were ready for school, asking what I'd packed for their lunches and urging me to hurry up or they would be late. I'd say 5-6 texts within 40 min with things to do or check of my list. I knew that day that she would be heading home.

Slowly she recovered and even went to work for a few hours during the 2nd week of August.

In the last couple of days however it seems to have caught up with her. She's struggling with indigestion which is likely caused by radioactive leaking from her liver to stomach. Not to be unexpected but she sleeps with a bunch of pillows propping her up. The other problem is esophageal spasms, these are causing pain and stopping her from eating (and discourage drinking which brings on dehydration which causes other problems). Already she's lost weight so not eating is not good.

Picked up some new medication today so hopefully that will help her.

From here we are very much in the wait and hope she gets better soon. There is no reason to expect that the effects won't wear off in the near future. Next step will be another scan, probably around the end of Sept or early Oct.

That is pretty much where we are up to for now. I will try a little harder to keep up to date with posts but when there is nothing to report, it seems a little mundane. On the flip side, it means I'm only posting when there is something negative to say and that doesn't seem right either.

Regardles, stay well.